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Accountability Demanded – NYC Foster Children AIDS drug trials

Codes of ethical research and Federal regulations for the protection of children were grossly violated; children suffered harm, many died. The efforts of AHRP to hold the medical research community and government bureaucrats accountable for exploiting vulnerable children in unethical research practices is gaining momentum. Our complaint about a series of AIDS drug experiments that were conducted on many hundreds of babies and children of color in New York City has triggered two federal investigations and protests by community representatives.

Two City Council members are calling on the New York City Department of Investigation to probe a series of clinical trials that gave potentially toxic experimental AIDS drugs to 465 HIV-positive foster kids. Councilmen Bill Perkins (D-Harlem) and Charles Barron (D-East New York) made the request at a press conference at City Hall on Sunday, April 24, in the wake of the administration’s stunning revelation on Friday, that the number of kids involved in trials was far greater than the 75 to 80 previously reported. [See Newsday below]

Constitutional lawyer, John Whitehead, of The Rutherford Institute calls these inhumane experiments “Mengele’s Legacy.” [See below]

A well-documented Fox News column raises questions that demand answers [see below]

Since the Code of Federal Regulations prohibits the use of children who are wards of the state from being subjected to experiments involving greater than minimal risk, we add the following questions:

  • Who authorized the illegal use of children in experimental drug trials?
  • Which institutional review boards approved the experiments‹and how did they justify their approval?
  • Who waived the federal requirement that every child who is a ward of the state must be protected by a personal advocate to ensure that each child’s best interest is seved by the child’s participation in research?
  • Why were the sick children not given the best available standard treatment?
  • Was there a limit to how many experiments an individual child could be subjected?
  • What adverse events did children suffer during the trials or within 6 months after?
  • How many children were subjected to surgical insertion of feeding tubes?
  • How many children’s health deteriorated during the experiments–how many children died?
  • How many children were critically ill before the trials–how many were “presumed” to be ill?
  • How much money did NIH provide for these pediatric drug experiments‹
  • and did the AIDS institute know that foster care children were used as subjects?

Those responsible had better provide answers sooner rather than later.

Contact: Vera Hassner Sharav




 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 



 

 

 

 

 

 

 

 

 



 

 



 

 

 

 

 

 

 

 

 

 

 

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